Congenital Adrenal Hyperplasia*del

Common Name(s)

Congenital Adrenal Hyperplasia*del

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Congenital Adrenal Hyperplasia*del" for support, advocacy or research.

CARES Foundation, Inc.

CARES Foundation is a 501(c)(3) organization that leads the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research. It serves patients, health professionals, and the public with information about congenital adrenal hyperplasia; a group of disorders that result from the impaired ability of the adrenal glands to produce hormones known as corticosteriods, resulting in various metabolic problems. All CARES services are provided free of charge or at a nominal fee to anyone requesting them. These include: one-on-one support for affected individuals and their families; research grants and participant recruiting for qualifying researchers for treatments and a cure; educational conferences for individuals, their families, and health care professionals; educational tools for better living with CAH; monitoring of newborn screening in the US and support for development internationally; b

Last Updated: 31 Dec 2012

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Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

Last Updated: 26 Dec 2012

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The MAGIC Foundation

The MAGIC Foundation Mission The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. Since its inception the Foundation has grown to include support services for adults who were also impacted by these disorders.

Last Updated: 7 Nov 2013

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werathah

To provide support and health education to patients and their families with genetic and congenital disorders

Last Updated: 1 May 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Congenital Adrenal Hyperplasia*del" for support, advocacy or research.

CARES Foundation, Inc.

CARES Foundation is a 501(c)(3) organization that leads the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research. It serves patients, health professionals, and the public with information about congenital adrenal hyperplasia; a group of disorders that result from the impaired ability of the adrenal glands to produce hormones known as corticosteriods, resulting in various metabolic problems. All CARES services are provided free of charge or at a nominal fee to anyone requesting them. These include: one-on-one support for affected individuals and their families; research grants and participant recruiting for qualifying researchers for treatments and a cure; educational conferences for individuals, their families, and health care professionals; educational tools for better living with CAH; monitoring of newborn screening in the US and support for development internationally; b

http://www.caresfoundation.org

Last Updated: 31 Dec 2012

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Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

http://www.jewishgenetics.org

Last Updated: 26 Dec 2012

View Details
The MAGIC Foundation

The MAGIC Foundation Mission The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. Since its inception the Foundation has grown to include support services for adults who were also impacted by these disorders.

http://www.magicfoundation.org

Last Updated: 7 Nov 2013

View Details
werathah

To provide support and health education to patients and their families with genetic and congenital disorders

http://www.werathah.com

Last Updated: 1 May 2013

View Details

 

General Support Organizations

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General Resources

Introduction to Congenital Adrenal Hyperplasia

General Information for the parents of newly diagnosed children in easy to understand terms and many resources which parents of affected children find very helpful (including private chat groups).

Uploaded By: The MAGIC Foundation

Updated 7 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Congenital Adrenal Hyperplasia*del" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Congenital Adrenal Hyperplasia*del" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.