Cerebral Palsy

Common Name(s)

Cerebral Palsy

Cerebral Palsy is a set of conditions that affect movement balance and posture caused by disruption to a developing brain, usually before birth. In some cases there may be some genetic effect that results in "miswiring" during neuronal development. Generally cerebral palsy is usually diagnosed during infancy or preschool and the effect on physical ability varies greatly. Cerebral palsy can cause impaired movement associated with exaggerated reflexes, floppiness or rigidity of the limbs and trunk, abnormal posture, involuntary movements, unsteadiness of walking, or some combination of these. Some people show normal to near normal intellectual function, but others may have intellectual disabilities. Epilepsy, blindness or deafness also may be present.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cerebral Palsy" for support, advocacy or research.

Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

Last Updated: 2 Aug 2013

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March of Dimes Foundation

Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. We carry out this mission thorough research, community services, education and advocacy to save babies? lives.

Last Updated: 1 Jun 2015

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Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

Last Updated: 15 Apr 2014

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Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

Last Updated: 15 Apr 2013

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Pediatric Brain Foundation

Pediatric Brain Foundation's Mission is Three-fold: 1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder 2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology 3. Educate the public and public officials on the critical importance of funding pediatric neurological research

Last Updated: 22 Apr 2015

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The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

Last Updated: 11 Apr 2013

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The Arc of Illinois

The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices.

Last Updated: 8 Apr 2013

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Thisbe and Noah Scott Foundation, Inc.

It is the mission of the Thisbe and Noah Scott Foundation, Inc. to save lives by promoting research, awareness and support for children and families affected by pediatric neuromuscular diseases.

Last Updated: 19 May 2015

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United Cerebral Palsy Association, Inc.

The mission of United Cerebral Palsy is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

Last Updated: 2 Dec 2009

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General Support Organizations

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How do you compare to others with this condition?

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Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cerebral Palsy" for support, advocacy or research.

Isabella's Aviary Alliance, LLC

Isabella’s Aviary Alliance, LLC actively demonstrates, through Isabella’s passionate and loving care in breeding and raising baby parrots for other special needs children, the possibility for two hearts—bird and child—coming together and connecting in a way which infinitely brightens the lives of both.

http://www.isabellasaviary.com

Last Updated: 2 Aug 2013

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March of Dimes Foundation

Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. We carry out this mission thorough research, community services, education and advocacy to save babies? lives.

http://www.modimes.org

Last Updated: 1 Jun 2015

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Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

http://www.mofamilytofamily.org

Last Updated: 15 Apr 2014

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Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

http://www.oklahomafamilynetwork.org

Last Updated: 15 Apr 2013

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Pediatric Brain Foundation

Pediatric Brain Foundation's Mission is Three-fold: 1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder 2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology 3. Educate the public and public officials on the critical importance of funding pediatric neurological research

http://www.pediatricbrainfoundation.org

Last Updated: 22 Apr 2015

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The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

http://www.arceci.org

Last Updated: 11 Apr 2013

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The Arc of Illinois

The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices.

http://www.thearcofil.org/

Last Updated: 8 Apr 2013

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Thisbe and Noah Scott Foundation, Inc.

It is the mission of the Thisbe and Noah Scott Foundation, Inc. to save lives by promoting research, awareness and support for children and families affected by pediatric neuromuscular diseases.

http://www.thisbeandnoah.org/

Last Updated: 19 May 2015

View Details
United Cerebral Palsy Association, Inc.

The mission of United Cerebral Palsy is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.

http://www.ucpa.org

Last Updated: 2 Dec 2009

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Cerebral Palsy" returned 861 free, full-text research articles on human participants. First 3 results:

Stress fracture of the navicular bone in a patient with cerebral palsy: a case report.
 

Author(s): Mari Yoshikawa, Yoshitaka Nakanishi, Yoshika Kawamura, Keisuke Matsuo, Mitsuru Saeki, Futoshi Wada

Journal: J. UOEH. 2015 Mar;37(1):11-5.

 

A 14-year-old girl with cerebral palsy (spastic diplegia) underwent examination due to a chief complaint of right foot pain, and was diagnosed with a stress fracture of the central one third of the navicular bone. The fracture was considered to have developed due to repeated loading ...

Last Updated: 19 Mar 2015

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[Adolescents with cerebral palsy and their contact with the GP and the habilitative services].
 

Author(s): Kjersti Ramstad, Reidun Birgitta Jahnsen, Trond H Diseth

Journal:

 

Cerebral palsy (CP) often entails a need for health and social services throughout life. Upon scrutiny, it has been found that the transition from services for children and adolescents to services for adults is particularly challenging. The study investigates contact between adolescents ...

Last Updated: 12 Mar 2015

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Anterior knee pain in patients with cerebral palsy.
 

Author(s): Kenan Koca, Faruk Akyildiz, Serkan Akpancar, Safak Ekinci

Journal: Clin Orthop Surg. 2015 Mar;7(1):140-1.

 

Last Updated: 2 Mar 2015

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Cerebral Palsy" returned 101 free, full-text review articles on human participants. First 3 results:

Treatable inborn errors of metabolism presenting as cerebral palsy mimics: systematic literature review.
 

Author(s): Emma L Leach, Michael Shevell, Kristin Bowden, Sylvia Stockler-Ipsiroglu, Clara D M van Karnebeek

Journal:

 

Inborn errors of metabolism (IEMs) have been anecdotally reported in the literature as presenting with features of cerebral palsy (CP) or misdiagnosed as 'atypical CP'. A significant proportion is amenable to treatment either directly targeting the underlying pathophysiology (often ...

Last Updated: 5 Mar 2015

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Upper extremity strength measurement for children with cerebral palsy: a systematic review of available instruments.
 

Author(s): Koen J F M Dekkers, Eugene A A Rameckers, Rob J E M Smeets, Yvonne J M Janssen-Potten

Journal: Phys Ther. 2014 May;94(5):609-22.

 

In order to make inferences about strength related to development or treatment interventions, it is important to use measurement instruments that have sound clinimetric properties.

Last Updated: 5 May 2014

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Efficacy of upper limb therapies for unilateral cerebral palsy: a meta-analysis.
 

Author(s): Leanne Sakzewski, Jenny Ziviani, Roslyn N Boyd

Journal: Pediatrics. 2014 Jan;133(1):e175-204.

 

Children with unilateral cerebral palsy present with impaired upper limb (UL) function affecting independence, participation, and quality of life and require effective rehabilitation. This study aims to systematically review the efficacy of nonsurgical upper limb therapies for children ...

Last Updated: 3 Jan 2014

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Cerebral Palsy and Sleep Apnea in North Part of Finland
 

Status: Recruiting

Condition Summary: Sleep Apnoea; Cerebral Palsy

 

Last Updated: 22 May 2013

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Cerebral Palsy Hip Health Related Quality of Life
 

Status: Recruiting

Condition Summary: Cerebral Palsy; Patient Undergoing Hip Surgery; Quality of Life

 

Last Updated: 16 Jul 2015

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Cell Therapy for Cerebral Palsy
 

Status: Recruiting

Condition Summary: Cerebral Palsy

 

Last Updated: 15 Sep 2014

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