Cardiomyopathy

Common Name(s)

Cardiomyopathy

Cardiomyopathy refers to group of conditions affecting the heart muscle, which cause the heart to become enlarged, thick and/or rigid. There are many different causes for cardiomyopathy including certain infections, exposure to toxic chemicals, and autoimmune conditions, where the body’s defense system actually attacks itself. As cardiomyopathy worsens, the heart muscle becomes weaker and is less able to pump blood through the body and maintain its rhythm. This can lead to heart failure, a condition where the heart tires out. Some may experience no symptoms and need no treatment, while, for others, cardiomyopathy may develop quickly with severe symptoms and serious complications. Typical symptoms of cardiomyopathy include breathlessness, swelling of the legs, bloating, cough, fatigue, dizziness and irregular heartbeats. A physician can diagnose cardiomyopathy using imaging tests, stress tests, blood tests or biopsy, where a needle is used to take out heart tissue to look at under a microscope. Treatment varies by type of cardiomyopathy, but commonly medications are used to manage symptoms. If the heart is badly damaged, certain more invasive procedures and surgeries may be needed to repair or replace the heart.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cardiomyopathy" for support, advocacy or research.

Barth Syndrome Foundation

Our mission is saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

Last Updated: 29 May 2015

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Cardiomyopathy Association

The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. The charity helps families through cardiomyopathy support nurses, information days, support groups and a network of affected volunteers who provide support to others by telephone and email. It also has an extensive website (www.cardiomyopathy.org) with details about the condition, treatments, living with the disease, and latest research.

Last Updated: 15 Mar 2013

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Children's Cardiomyopathy Foundation

Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.

Last Updated: 20 Jul 2015

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cardiomyopathy" for support, advocacy or research.

Barth Syndrome Foundation

Our mission is saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

https://www.barthsyndrome.org

Last Updated: 29 May 2015

View Details
Cardiomyopathy Association

The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. The charity helps families through cardiomyopathy support nurses, information days, support groups and a network of affected volunteers who provide support to others by telephone and email. It also has an extensive website (www.cardiomyopathy.org) with details about the condition, treatments, living with the disease, and latest research.

http://www.cardiomyopathy.org

Last Updated: 15 Mar 2013

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Children's Cardiomyopathy Foundation

Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.

http://www.childrenscardiomyopathy.org

Last Updated: 20 Jul 2015

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General Support Organizations

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General Resources

CCF General Brochure

This brochure is an introduction to the Children's Cardiomyopathy Foundation, including a brief history of the organization and descriptions of the foundation's work.

Updated 18 Oct 2012

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CCF Educational Materials

A link to the various educational materials CCF offers for families and professionals.

Updated 18 Oct 2012

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CCF Patient Resource Overview

An overview of the patient resources CCF has to offer.

Updated 22 Oct 2012

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CCF Awarded Research Grants

A description of the types of projects CCF funds to promote scientific knowledge related to the treatment and cure of pediatric cardiomyopathy.

Updated 22 Oct 2012

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CCF Research Grant Program Overview.

CCF Research Grant Program Overview.

Updated 22 Oct 2012

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Barth Syndrome Professional Healthcare Brochure

Important information regarding diagnosis and treatment of Barth syndrome.

Updated 12 Apr 2014

Open Doc
2014 Conference Program

2014 Conference Program

Updated 14 Jan 2015

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How to Diagnose

How to diagnose Barth syndrome

Updated 14 Jan 2015

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Overview of Barth syndrome

Overview of Barth syndrome

Updated 14 Jan 2015

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Cardiomyopathy" returned 5730 free, full-text research articles on human participants. First 3 results:

Benznidazole for Chronic Chagas' Cardiomyopathy.
 

Author(s): Carlos A Morillo, Jose A Marin-Neto, Alvaro Avezum

Journal: N. Engl. J. Med.. 2016 Jan;374(2):189-90.

 

Last Updated: 14 Jan 2016

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Takotsubo (Stress) Cardiomyopathy.
 

Author(s): Christian Templin, Jelena-Rima Ghadri, L Christian Napp

Journal: N. Engl. J. Med.. 2015 Dec;373(27):2689-91.

 

Last Updated: 31 Dec 2015

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Arrhythmogenic right ventricular cardiomyopathy in monozygotic twin sisters, and persistent left superior vena cava in one complicating implantation of ICD.
 

Author(s): Mehmet Ali Astarcıoğlu, Mehmet Yaymacı, Taner Şen, Celal Kilit, Basri Amasyalı

Journal: Turk Kardiyol Dern Ars. 2015 Oct;43(7):644-7.

 

Arrhythmogenic right ventricular cardiomyopathy (ARVC) is an inherited cardiomyopathy characterized histologically by fibro-fatty replacement of heart muscle, and clinically by ventricular arrhythmias and right ventricular dysfunction. This report presents monozygotic twins with ARVC, ...

Last Updated: 5 Nov 2015

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Cardiomyopathy" returned 515 free, full-text review articles on human participants. First 3 results:

A New Insight Into Sudden Cardiac Death in Young People: A Systematic Review of Cases of Takotsubo Cardiomyopathy.
 

Author(s): Yueyue Wang, Lei Xia, Xiaodong Shen, Guoxin Han, Dan Feng, Hongju Xiao, Yongzhi Zhai, Xin Chen, Yuanyuan Miao, Chunhong Zhao, Yingchan Wang, Mingguang Guo, Tanshi Li, Hai Yan Zhu

Journal: Medicine (Baltimore). 2015 Aug;94(32):e1174.

 

Takotsubo cardiomyopathy (TTC) causes sudden cardiac death and has garnered increased attention worldwide in recent years. However, few studies have clearly classified the risk factors for this disease, including gender, race and morbidity, as well as the physical and mental stressors ...

Last Updated: 13 Aug 2015

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Treatment of Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia: An International Task Force Consensus Statement.
 

Author(s): Domenico Corrado, Thomas Wichter, Mark S Link, Richard N W Hauer, Frank E Marchlinski, Aris Anastasakis, Barbara Bauce, Cristina Basso, Corinna Brunckhorst, Adalena Tsatsopoulou, Harikrishna Tandri, Matthias Paul, Christian Schmied, Antonio Pelliccia, Firat Duru, Nikos Protonotarios, Na Mark Estes, William J McKenna, Gaetano Thiene, Frank I Marcus, Hugh Calkins

Journal: Circulation. 2015 Aug;132(5):441-53.

 

Last Updated: 4 Aug 2015

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Mesenchymal stem cell therapy for doxorubicin cardiomyopathy: hopes and fears.
 

Author(s): Fernando Ezquer, Jaime Gutiérrez, Marcelo Ezquer, Christian Caglevic, Helio C Salgado, Sebastián D Calligaris

Journal:

 

Chemotherapy has made an essential contribution to cancer treatment in recent decades despite its adverse effects. As cancer survivors have increased, concern about ex-patient lifespan has become more important too. Doxorubicin is an effective anti-neoplastic drug that produces a ...

Last Updated: 24 Jun 2015

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

German Centre for Cardiovascular Research Cardiomyopathy Register
 

Status: Recruiting

Condition Summary: Acute Myocarditis; Dilated Cardiomyopathies; Hypertrophic Cardiomyopathies; Left Ventricular Myocardial Noncompaction Cardiomyopathy; Arrhythmogenic Right Ventricular Cardiomyopathies; Amyloidosis

 

Last Updated: 20 Nov 2015

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Pediatric Cardiomyopathy Mutation Analysis
 

Status: Recruiting

Condition Summary: Cardiomyopathies; Dilated Cardiomyopathy; Hypertrophic Cardiomyopathy; Restrictive Cardiomyopathy; Arrhythmogenic Right Ventricular Cardiomyopathy; Left Ventricular Non-compaction Cardiomyopathy

 

Last Updated: 28 Apr 2015

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Registry and Survey of Women With Pregnancy Related Cardiomyopathy
 

Status: Recruiting

Condition Summary: Cardiomyopathy; Pregnancy-Associated Cardiomyopathy; Heart Failure

 

Last Updated: 25 May 2006

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