Cardiomyopathy

Common Name(s)

Cardiomyopathy

Cardiomyopathy refers to group of conditions affecting the heart muscle, which cause the heart to become enlarged, thick and/or rigid. There are many different causes for cardiomyopathy including certain infections, exposure to toxic chemicals, and autoimmune conditions, where the body’s defense system actually attacks itself. As cardiomyopathy worsens, the heart muscle becomes weaker and is less able to pump blood through the body and maintain its rhythm. This can lead to heart failure, a condition where the heart tires out. Some may experience no symptoms and need no treatment, while, for others, cardiomyopathy may develop quickly with severe symptoms and serious complications. Typical symptoms of cardiomyopathy include breathlessness, swelling of the legs, bloating, cough, fatigue, dizziness and irregular heartbeats. A physician can diagnose cardiomyopathy using imaging tests, stress tests, blood tests or biopsy, where a needle is used to take out heart tissue to look at under a microscope. Treatment varies by type of cardiomyopathy, but commonly medications are used to manage symptoms. If the heart is badly damaged, certain more invasive procedures and surgeries may be needed to repair or replace the heart.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cardiomyopathy" for support, advocacy or research.

Barth Syndrome Foundation

Our mission is saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

Last Updated: 11 Apr 2016

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Cardiomyopathy Association

The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. The charity helps families through cardiomyopathy support nurses, information days, support groups and a network of affected volunteers who provide support to others by telephone and email. It also has an extensive website (www.cardiomyopathy.org) with details about the condition, treatments, living with the disease, and latest research.

Last Updated: 15 Mar 2013

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Children's Cardiomyopathy Foundation

Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.

Last Updated: 20 Jul 2015

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Team Titin

Team Titin is making a worldwide difference in Titin related muscle and heart disorders by: collaborating with other organizations, raising awareness, providing education, and supporting research. Our goal is to serve as a catalyst for researchers and clinicians to develop a better understanding of Titin related disorders leading ultimately to a cure.

Last Updated: 23 May 2016

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Cardiomyopathy" for support, advocacy or research.

Barth Syndrome Foundation

Our mission is saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

https://www.barthsyndrome.org

Last Updated: 11 Apr 2016

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Cardiomyopathy Association

The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. The charity helps families through cardiomyopathy support nurses, information days, support groups and a network of affected volunteers who provide support to others by telephone and email. It also has an extensive website (www.cardiomyopathy.org) with details about the condition, treatments, living with the disease, and latest research.

http://www.cardiomyopathy.org

Last Updated: 15 Mar 2013

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Children's Cardiomyopathy Foundation

Our mission is to accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.

http://www.childrenscardiomyopathy.org

Last Updated: 20 Jul 2015

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Team Titin

Team Titin is making a worldwide difference in Titin related muscle and heart disorders by: collaborating with other organizations, raising awareness, providing education, and supporting research. Our goal is to serve as a catalyst for researchers and clinicians to develop a better understanding of Titin related disorders leading ultimately to a cure.

http://titinmyopathy.com/

Last Updated: 23 May 2016

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General Resources

CCF General Brochure

This brochure is an introduction to the Children's Cardiomyopathy Foundation, including a brief history of the organization and descriptions of the foundation's work.

Updated 18 Oct 2012

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CCF Educational Materials

A link to the various educational materials CCF offers for families and professionals.

Updated 18 Oct 2012

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CCF Patient Resource Overview

An overview of the patient resources CCF has to offer.

Updated 22 Oct 2012

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CCF Awarded Research Grants

A description of the types of projects CCF funds to promote scientific knowledge related to the treatment and cure of pediatric cardiomyopathy.

Updated 22 Oct 2012

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CCF Research Grant Program Overview.

CCF Research Grant Program Overview.

Updated 22 Oct 2012

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Barth Syndrome Professional Healthcare Brochure

Important information regarding diagnosis and treatment of Barth syndrome.

Updated 12 Apr 2014

Open Doc
2014 Conference Program

2014 Conference Program

Updated 14 Jan 2015

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How to Diagnose

How to diagnose Barth syndrome

Updated 14 Jan 2015

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Overview of Barth syndrome

Overview of Barth syndrome

Updated 14 Jan 2015

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Barath Syndrome Journal

Newsletter published twice a year.

Updated 15 Mar 2016

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Cardiomyopathy" returned 6131 free, full-text research articles on human participants. First 3 results:

Peripartum cardiomyopathy in a patient treated for acute myeloid leukemia.
 

Author(s): Natasa Colović, Petar Seferović, Miroslava Plećić, Ana Vidović, Nada Suvajdzić, Dragica Tomin

Journal: Srp Arh Celok Lek. ;144(1-2):77-80.

 

Peripartum cardiomyopathy usually presents with systolic heart failure during the last months of pregnancy and up to five months postpartum. The disease is rare and can be fatal.

Last Updated: 9 Jun 2016

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Response to Letter Regarding Article, "Treatment of Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia: An International Task Force Consensus Statement".
 

Author(s): Domenico Corrado, Thomas Wichter, Mark S Link, Richard Hauer, Frank Marchlinski, Aris Anastasakis, Barbara Bauce, Cristina Basso, Corinna Brunckhorst, Adalena Tsatsopoulou, Harikrishna Tandri, Matthias Paul, Christian Schmied, Antonio Pelliccia, Firat Duru, N A Mark Estes, William J McKenna, Gaetano Thiene, Frank I Marcus, Hugh Calkins

Journal: Circulation. 2016 Mar;133(11):e437-8.

 

Last Updated: 15 Mar 2016

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Clinical Characteristics and Prognosis of Peripartum Cardiomyopathy in 28 Patients.
 

Author(s): Ying Liu, Yong Zeng

Journal: Zhongguo Yi Xue Ke Xue Yuan Xue Bao. 2016 Feb;38(1):78-82.

 

To analyze the clinical features and prognosis of patients with peripartum cardiomyopathy (PPCM).

Last Updated: 9 Mar 2016

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Cardiomyopathy" returned 561 free, full-text review articles on human participants. First 3 results:

Non-compaction cardiomyopathy: a genetically and clinically heterogeneous disorder.
 

Author(s): Isabel Rooms, Karl Dujardin, Johan De Sutter

Journal: Acta Cardiol. 2015 Dec;70(6):625-31.

 

Left ventricular non-compaction (LVNC) is a rare disease that can occur isolated or in association with other disorders, including congenital heart disease and musculoskeletal disorders. It is characterized by a two-layered myocardium with excessive trabeculation of the left ventricle. ...

Last Updated: 31 Dec 2015

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Insulin resistance and hyperinsulinaemia in diabetic cardiomyopathy.
 

Author(s): Guanghong Jia, Vincent G DeMarco, James R Sowers

Journal: Nat Rev Endocrinol. 2016 Mar;12(3):144-53.

 

Insulin resistance, type 2 diabetes mellitus and associated hyperinsulinaemia can promote the development of a specific form of cardiomyopathy that is independent of coronary artery disease and hypertension. Termed diabetic cardiomyopathy, this form of cardiomyopathy is a major cause ...

Last Updated: 12 Feb 2016

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Dilated Cardiomyopathy Revealing Cushing Disease: A Case Report and Literature Review.
 

Author(s): Lucien Marchand, Bérénice Segrestin, Marion Lapoirie, Véronique Favrel, Julie Dementhon, Emmanuel Jouanneau, Gérald Raverot

Journal: Medicine (Baltimore). 2015 Nov;94(46):e2011.

 

Cardiovascular impairments are frequent in Cushing's syndrome and the hypercortisolism can result in cardiac structural and functional changes that lead in rare cases to dilated cardiomyopathy (DCM). Such cardiac impairment may be reversible in response to a eucortisolaemic state.A ...

Last Updated: 20 Nov 2015

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Symptoms, Diagnosis, and Treatment

There are currently no related results available in Genetics Home Reference.

There are currently no related results available in GeneReviews.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

German Centre for Cardiovascular Research Cardiomyopathy Register
 

Status: Recruiting

Condition Summary: Acute Myocarditis; Dilated Cardiomyopathies; Hypertrophic Cardiomyopathies; Left Ventricular Myocardial Noncompaction Cardiomyopathy; Arrhythmogenic Right Ventricular Cardiomyopathies; Amyloidosis

 

Last Updated: 24 Mar 2016

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Pediatric Cardiomyopathy Mutation Analysis
 

Status: Recruiting

Condition Summary: Cardiomyopathies; Dilated Cardiomyopathy; Hypertrophic Cardiomyopathy; Restrictive Cardiomyopathy; Arrhythmogenic Right Ventricular Cardiomyopathy; Left Ventricular Non-compaction Cardiomyopathy

 

Last Updated: 23 Feb 2016

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Registry and Survey of Women With Pregnancy Related Cardiomyopathy
 

Status: Recruiting

Condition Summary: Cardiomyopathy; Pregnancy-Associated Cardiomyopathy; Heart Failure

 

Last Updated: 25 May 2006

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