Pierpont Syndrome Family
Pierpont Syndrome Family print
We provide parent support for families with children diagnosed with Pierpont Syndrome:(Plantar Lipomatosis, Unusual Facial Phenotype and Developmental Delay) and families with similar yet undiagnosed children.
Address & Contact
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Information Provided for
- Families of Affected Individuals
- Care Providers
- Health Care Professionals
- The Public
Printed Materials Provided in
Educational Materials Include
- Journal Articles on Condition
- Research Updates
- Membership Directory
Conferences & Workshops
No information is available for Conferences/Workshops.
Service and Support Information
Range of Services Include
- Referrals to Local Chapter or Group
- Referrals to Research Studies
- Referrals to Matching Individuals/Families
- Peer-to-peer Counseling
- Medical Referrals
- Genetic Information
- Referrals for Non-medical Services
- Non-medical Services
- E-mail List
Financial Assistance for
No information is available for Financial Assistance for.
No information is available for Cohort Development.
No information is available for Research Funding.
No information is available for Resources.