Peutz-Jeghers Syndrome & Juvenile Polyposis Syndrome Online Support Group
Peutz-Jeghers Syndrome & Juvenile Polyposis Syndrome Online Support Group print
We are an e-mail forum providing support and information for individuals, families and friends affected by PJS (Peutz-Jeghers syndrome) & JPS (Juvenile Polyposis syndrome). Medical professionals and researchers may join too.
Address & Contact
|Click on the 'New Address' link to add a new address profile.||New Address|
|Click on the 'New Person' link to add a new contact person for your organization.||New Person|
|Click 'Update' to change an existing contact and 'delete' to remove it.|
Information Provided for
- Affected Individuals
- Families of Affected Individuals
- Care Providers
- Health Care Professionals
Printed Materials Provided in
No information is available for Printed Materials Provided in.
Educational Materials Include
- Resource Guide
Conferences & Workshops
- Affected Individuals and/or Families
- Annual PJS Meet & Greet
Service and Support Information
Range of Services Include
- Referrals to Research Studies
- Referrals to Matching Individuals/Families
- Professional Counseling
- Peer-to-peer Counseling
- Medical Referrals
- Genetic Information
- Referrals for Non-medical Services
- E-mail List
- Annual Meet & Greet
Financial Assistance for
No information is available for Financial Assistance for.
No information is available for Cohort Development.
No information is available for Research Management.
No information is available for Research Funding.
No information is available for Resources.