Neurofibromatosis Mid-Atlantic print
Neurofibromatosis Mid-Atlantic is a non profit organization dedicated to helping people with Neurofibromatosis and their loved ones make sense of the complex medical disorder. We provide reliable, complete, and up to date information about Neurofibromatosis. We provide education, support, and community. There is no charge for our services.
Address & Contact
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Information Provided for
- Affected Individuals
- Families of Affected Individuals
- Care Providers
- Health Care Professionals
- The Public
Printed Materials Provided in
Educational Materials Include
- Fact Sheet(s)
- Journal Articles on Condition
- Research Updates
- Student Materials
Conferences & Workshops
- Affected Individuals and/or Families
Service and Support Information
Range of Services Include
- Referrals to Research Studies
- Referrals to Matching Individuals/Families
- Peer Support
- Peer-to-peer Counseling
- Grief Counseling
- Help with Adoption or Placement
- Medical Referrals
- Genetic Information
- Rehabilitation Resource Referrals
- Referrals for Non-medical Services
- Non-medical Services
- Awareness Programs
- Telephone Helpline
- Summer Camp
- Services for the Hearing Impaired
Financial Assistance for
No information is available for Financial Assistance for.
No information is available for Cohort Development.
No information is available for Disease Characterization.
No information is available for Research Management.
No information is available for Research Funding.
No information is available for Resources.