Living with Trisomy 13 - Miracles in Progress

Brochure:

Living with Trisomy 13 - Miracles in Progress print

Mission Statement:

Living With Trisomy 13 is an outreach organization for trisomy and other rare diagnoses.Our mission is to assist families of children with trisomy and other rare diagnoses.We believe in embracing life one moment at a time and provide support to families who chose to carry to term.

Conditions Served:

Organization Name: Living with Trisomy 13 - Miracles in Progress
Acronym: LWT13
Status of Org: Incorporated Nonprofit
Type of Org: Condition – specific – International
Have 501(c)3 Status: Yes
Year Established: 2004
Professional/Medical Board: No
Board of Directors: Yes
Paid Staff: No
Services Provided in these Languages: English
Other Languages Spoken: Spanish, Dutch
# of People with Conditions on Your Mailing List: 300
Total # of People on Mailing List: 300
Membership Size: 300
# of Chapters: 21
 
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Address & Contact

Organization Address

Phone: (631) 316-6032
Fax #: (631) 513-4476
Address 1: 76 Doolittle St.
City: Brentwood
State: New York
Zip/Postal Code: 11717
Country: United States

Contact Persons

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Educational Materials

Information Provided for

  • Affected Individuals
  • Families of Affected Individuals
  • Care Providers
  • Health Care Professionals
  • Researchers
  • The Public
  • Teachers
  • Students
  • Media
  • Legislators

Printed Materials Provided in

  • English

        Educational Materials Include

        • Website
        • Journal Articles on Condition
        • Journal
        • Video(s)/Movie(s)

        Conferences & Workshops

        No information is available for Conferences/Workshops.

        Service and Support Information

        Range of Services Include

        • Referrals to Local Chapter or Group
        • Referrals to Research Studies
        • Referrals to Matching Individuals/Families
        • Peer Support
        • Peer-to-peer Counseling
        • Help with Adoption or Placement
        • Genetic Information
        • Non-medical Services
        • Financial Referrals
        • Awareness Programs
        • Advocacy
        • E-mail List
        • Support for families of children with trisomy and other rare disorders

        Financial Assistance for

        • Transportation
        • Assistive devices
        • When available we provide financial assistance to families that have incurred costs due to their chi

          Research Information

          Cohort Development

          No information is available for Cohort Development.

          Disease Characterization

          No information is available for Disease Characterization.

          Research Management

          No information is available for Research Management.

          Research Funding

          No information is available for Research Funding.

          Resources

            No information is available for Resources.