GBS/CIDP Foundation International

Brochure:

GBS/CIDP Foundation International print

Mission Statement:

To improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: Providing a network for all patients, their caregivers and families so that GBS or CIDP patients can depend on the Foundation for support, and reliable up-to-date information. Providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants. Expanding the Foundation’s role in sponsoring research and engaging in patient advocacy.

Conditions Served:

Chronic Inflammatory Demyelinating Polyneuropathy, Guillain-Barre Syndrome, Miller Fisher syndrome, Acute Motor Axonal Neuropathy (AMAN), Acute Motor Sensory Axonal Neuropathy (AMSAN), Multifocal Motor Neuropathy (MMN), Multifocal Acquired Demyelinating Sensory and Motor Neuropathy (MADSAM)

Organization Name: GBS/CIDP Foundation International
Status of Org: Incorporated Nonprofit
Type of Org: Condition – specific – International
Have 501(c)3 Status: Yes
Year Established: 1980
Professional/Medical Board: Yes
Board of Directors: Yes
Paid Staff: Yes
Services Provided in these Languages: English
# of People with Conditions on Your Mailing List: 25000
Total # of People on Mailing List: 34000
# of Active Members/Volunteers in Your Organization: 250
# of Chapters: 180
 
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Address & Contact

Organization Address

Phone: 6106670131
Toll Free #: 8662243301
Fax #: 6106677036
Address 1: 104 1/2 Forrest Ave.
Address 2: The Holly Building
City: Narberth
State: Pennsylvania
Zip/Postal Code: 19072
Country: United States
Prefer to be Contacted: Email

Contact Persons

Name: Ms. Susan Mills Farrington
Title/Position: Executive Assistant
Degree: BA
Phone: 6106670131
Prefer to be Reached: day
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Educational Materials

Information Provided for

  • Affected Individuals
  • Families of Affected Individuals
  • Care Providers
  • Parents
  • Health Care Professionals
  • Researchers
  • The Public
  • Students
  • Legislators

Printed Materials Provided in

  • Arabic
  • Chinese
  • Czech
  • Dutch
  • English
  • French
  • German
  • Greek
  • Italian
  • Japanese
  • Portuguese
  • Spanish
  • Swedish
  • Turkish
  • Hebrew Hindi Urdu Amharic Romanian Georgian

Educational Materials Include

  • Pamphlet(s)
  • Booklet(s)
  • Website
  • Newsletter
  • CD(s)/DVD(s)

Conferences & Workshops

  • Affected Individuals and/or Families
  • Public
  • Professionals

    Service and Support Information

    Range of Services Include

    • Referrals to Local Chapter or Group
    • Medical Referrals
    • Financial Referrals
    • Awareness Programs
    • Advocacy
    • Training

    Financial Assistance for

    No information is available for Financial Assistance for.

    Research Information

    Cohort Development

    No information is available for Cohort Development.

    Disease Characterization

    No information is available for Disease Characterization.

    Research Management

    Participant Recruitment: Yes
    Award Research Grants: Yes
    Provide Information about Clinical Trials: Yes

    Research Funding

    No information is available for Research Funding.

    Resources

      No information is available for Resources.