Dravet Syndrome Foundation Disease Support Organization Last Updated: Jan 3, 2019 03:54:07 pm Brochure Established: 2009 Area Served: International The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families. Website: http://www.dravetfoundation.org/ Diseases Supported Dravet syndrome PO Box 16536 West Haven, Connecticut 06516 United States 203-392-1950 firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit International Organization 501(c)3 Status Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $1,000,000 Annual Budget $400,000 Funding for Research Funding Sources: N/A This organization receives funding from a company that produces a test or treatment for the condition it serves: Yes If yes, % of funding from such companies? 10 Our Membership N/A Membership Size N/A # of Chapters 6,000 Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Resources Disease resources include educational and informational materials that can be tagged to appear on specific disease pages. Fact Sheet for Educational Settings Added On: Apr 21, 2015 Category: General An overview of Dravet syndrome and accommodations that will be needed for patients in the classroom. DSF Website Added On: Apr 21, 2015 Category: General Disease(s): Dravet syndrome DSF's website provides information for caregivers and professional on the diagnosis, management and treatment of Dravet syndrome. Showing 2 of 2 resources. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?