Pachyonychia congenita, type 1

Common Name(s)

Pachyonychia congenita, type 1

See Pachyonychia Congenita. Pachyonychia congenita Jadassohn Lewandowsky syndrome is listed incorrectly as a separate type of Pachyonychia Congenita. The former classification system of PC Type 1 and PC Type 2 has been replaced by a more correct, genetically-based classification (see McLean, Journal of Investigative Dermatology, May 2011).

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pachyonychia congenita, type 1" for support, advocacy or research.

Pachyonychia Congenita Project

Our mission is to develop and deliver effective treatments for Pachyonychia Congenita patients worldwide. Activities include research grants, educational outreach programs, Int'l PC Consortium annual scientific symposium, patient support meetings held annually, an IRB-approved research registry, free genetic testing and webinars and other support services for patients, families,

Last Updated: 1 May 2014

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General Support Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Pachyonychia congenita, type 1" for support, advocacy or research.

Pachyonychia Congenita Project

Our mission is to develop and deliver effective treatments for Pachyonychia Congenita patients worldwide. Activities include research grants, educational outreach programs, Int'l PC Consortium annual scientific symposium, patient support meetings held annually, an IRB-approved research registry, free genetic testing and webinars and other support services for patients, families,

http://www.pachyonychia.org

Last Updated: 1 May 2014

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General Support Organizations

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General Resources

Updated 1 May 2014

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Pachyonychia congenita, type 1" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Pachyonychia congenita, type 1" returned 0 free, full-text review articles on human participants.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.