Hereditary sensory and autonomic neuropathy 3

Common Name(s)

Hereditary sensory and autonomic neuropathy 3, Familial Dysautonomia

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hereditary sensory and autonomic neuropathy 3" for support, advocacy or research.

Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

Last Updated: 26 Dec 2012

View Details
Dysautonomia Foundation, Inc.

The Dysautonomia Foundation Inc. supports medical research, clinical care, public awareness and social services for the benefit of people with familial dysautonomia (FD).

Last Updated: 7 Jan 2013

View Details
Familial Dysautonomia Hope Foundation

FD Hope's mission is to improve the lives of individuals with FD by expanding research on FD towards the goal of better treatment options and a cure; supporting patient needs and bringing greater public awareness to FD.

Last Updated: 2 Dec 2009

View Details
Familial Dysautonomia Now Foundation (FD NOW)

Our Mission - To discover new treatments and cures for patients with FD. Our Vision - To ensure that those with FD will lead long, healthy, productive lives. Our Goal - To deliver the next safe, natural substance to the FD community by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Last Updated: 26 Mar 2013

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
Top

How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hereditary sensory and autonomic neuropathy 3" for support, advocacy or research.

Center for Jewish Genetics

The Center is dedicated to gathering and disseminating knowledge about Jewish genetic disorders and hereditary cancers. Its mission is to educate and serve health care professionals, clergy and the Jewish community.

http://www.jewishgenetics.org

Last Updated: 26 Dec 2012

View Details
Dysautonomia Foundation, Inc.

The Dysautonomia Foundation Inc. supports medical research, clinical care, public awareness and social services for the benefit of people with familial dysautonomia (FD).

http://www.familialdysautonomia.org

Last Updated: 7 Jan 2013

View Details
Familial Dysautonomia Hope Foundation

FD Hope's mission is to improve the lives of individuals with FD by expanding research on FD towards the goal of better treatment options and a cure; supporting patient needs and bringing greater public awareness to FD.

http://www.fdhope.org

Last Updated: 2 Dec 2009

View Details
Familial Dysautonomia Now Foundation (FD NOW)

Our Mission - To discover new treatments and cures for patients with FD. Our Vision - To ensure that those with FD will lead long, healthy, productive lives. Our Goal - To deliver the next safe, natural substance to the FD community by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

http://www.fdnow.org

Last Updated: 26 Mar 2013

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
Top

Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hereditary sensory and autonomic neuropathy 3" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hereditary sensory and autonomic neuropathy 3" returned 0 free, full-text review articles on human participants.

 
 
Top

Clinical Trial Information This information is provided by ClinicalTrials.gov

The Effects Of Bronchodilator Therapy On Respiratory And Autonomic Function In Patients With Familial Dysautonomia
 

Status: Recruiting

Condition Summary: Respiratory Disease in Familial Dysautonomia

 

Last Updated: 12 Nov 2013

Go to URL
Efficacy Study of an Online Educational Module Before Carrier Genetic Screening in Persons of Ashkenazi Jewish Descent.
 

Status: Recruiting

Condition Summary: Tay Sachs Disease; Canavan Disease; Familial Dysautonomia

 

Last Updated: 24 Jul 2014

Go to URL