Dandy-Walker syndrome
Common Name(s)
Dandy-Walker syndrome, Dandy-Walker complex
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Dandy-Walker syndrome" for support, advocacy or research.
The Dandy-Walker Alliance, Inc. is a non-profit corporation providing support and outreach to families, producing educational publications, hosting awareness events and programs, and funding research for the most common malformation of the hindbrain region, Dandy-Walker Syndrome. We support all efforts to determine the causes of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome.
Pediatric Brain Foundation's Mission is Three-fold: 1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder 2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology 3. Educate the public and public officials on the critical importance of funding pediatric neurological research
How do you compare to others with this condition?
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Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Dandy-Walker syndrome" for support, advocacy or research.
The Dandy-Walker Alliance, Inc. is a non-profit corporation providing support and outreach to families, producing educational publications, hosting awareness events and programs, and funding research for the most common malformation of the hindbrain region, Dandy-Walker Syndrome. We support all efforts to determine the causes of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome.
http://www.dandy-walker.org Pediatric Brain Foundation's Mission is Three-fold: 1. Expedite scientific research to find treatments and cures for ALL of the more than 14 million children, in the U.S. alone, living with some form of neurological disorder 2. Provide families and health care professionals with up-to-date information and resources on the latest discoveries in pediatric neurology 3. Educate the public and public officials on the critical importance of funding pediatric neurological research
http://www.pediatricbrainfoundation.orgRecommended Apps
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Finding the right clinical trial for Dandy-Walker syndrome can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.
Scientific Literature
Articles from the PubMed Database
Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Dandy-Walker syndrome" returned 20 free, full-text research articles on human participants.
First 3 results:
Journal: Chin. Med. J.. 2016 Mar;129(5):620-1.
Journal: Rev Neurol. 2014 Mar;58(6):284.
To view other free, full-text articles on human participants, please click on the link below.
Reviews from the PubMed Database
Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Dandy-Walker syndrome" returned 1 free, full-text review articles on human participants.
First 3 results:
Journal: Pediatr Neonatol. 2011 Feb;52(1):42-5.
Dandy-Walker syndrome (DWS) is a congenital brain malformation involving the cerebellum and fourth ventricle. We report a 6-month-old girl with DWS presenting an initially normal ventricular system and mild cyst-like lesion over the posterior fossa as assessed by postnatal brain sonography. ...
To view other free, full-text review articles on human participants, please click on the link below.
Symptoms, Diagnosis, and Treatment
https://ghr.nlm.nih.gov/gene/ZIC4
https://ghr.nlm.nih.gov/condition/walker-warburg-syndrome
https://ghr.nlm.nih.gov/gene/LARGE1
https://ghr.nlm.nih.gov/gene/ISPD
https://ghr.nlm.nih.gov/gene/POMT1
https://ghr.nlm.nih.gov/gene/POMT2
https://ghr.nlm.nih.gov/gene/FKRP
https://ghr.nlm.nih.gov/gene/FOXC1
https://ghr.nlm.nih.gov/condition/mosaic-variegated-aneuploidy-syndrome
https://ghr.nlm.nih.gov/gene/POMK
https://ghr.nlm.nih.gov/gene/FKTN
https://ghr.nlm.nih.gov/about/support-advocacy-groups
https://ghr.nlm.nih.gov/condition/autosomal-recessive-cerebellar-ataxia-type-1
https://ghr.nlm.nih.gov/condition/spastic-paraplegia-type-8
https://ghr.nlm.nih.gov/condition/lacrimo-auriculo-dento-digital-syndrome
https://ghr.nlm.nih.gov/condition/multiple-pterygium-syndrome
https://ghr.nlm.nih.gov/condition/trisomy-13
https://ghr.nlm.nih.gov/condition/kleefstra-syndrome
https://ghr.nlm.nih.gov/condition/usher-syndrome
There are currently no related results available in GeneReviews.
Clinical Trial Information This information is provided by ClinicalTrials.gov
Condition Summary: PHACE Syndrome
Finding the right clinical trial for Dandy-Walker syndrome can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.